This report focuses on the lived experiences of disabled children and children living with life-threatening and life-limiting conditions: two groups with especially complex health and care needs.

While underlining the significant progress that has been made over recent years, the report explores how the structure, design and capacity of services to support them can be shaky or non-existent, and are struggling to keep pace with the medical advances improving life expectancy.

The primary aim of this research is to provide recommendations about where the voluntary sector can add the greatest value and contribute to the greatest impact. Life to the Full sets out how improvements can be built on, and how gaps can be filled, to provide a more dignified, enjoyable and less stressful life for these children and their families.